Advocate and promote Hospice Palliative Care in Chinese American communities, so that the same level of understanding and awareness can have far reaching effect in areas where this type of care is underdeveloped and population is under served.
In collaboration with our members and partners, we center our work around the World Health Organization’s four-pillar public health model of palliative care provision:
- appropriate government policies (e.g. a national health, essential medicines and education)
- adequate drug availability
- the education of health professionals
- the implementation of palliative care at all levels of health care provision
We see the work of promoting hospice and palliative care as a social movement has to be the collaboration among many stakeholders and parties. These include:
- Patients, their families and communities
- Care Takers (both family members and volunteers)
- Health care providers
- Central and Local governments, policymakers and decision-makers
- HPCA members, both individuals and organizations
- national palliative care associations, organisations and hospices
- Academic institutions and educators
- General Public
What We Do
There are three key elements to HPCA’s work to bring hospice and palliative care to all who need it in China:
1. Raise Awareness and Understanding
There has been a strong lack of public awareness about hospice and palliative care – most people haven’t heard of it, or if they have, understanding it as a passive end-of-life care after the Active curative treatment is no longer working. Most people believe hospital is the place to die and it is worth trying the so called best and most costly medical treatment in ICU to lengthen the loved one’s life. The quality of life is not the priority or negligible in many people’s mind. There are also cultural taboos around death and the disclosure of diagnosis of terminal illness.
We will run a series of national campaigns to help raise awareness of palliative care and hospice in Chinese American communities in hope of changing attitudes on the topic.
We collect, develop, distribute a wide range of information such as books, articles, videos, research papers and promote them thru social media channels and internet, to target a wide range of audiences who may need such information on serious illness, palliative care, end-of-life care, bereavement care, social resource, etc..
2. Support Education and Training
Even though WHO 2004 recommendation that governments include palliative care in training curricula for health workers at all levels, a systematic integration into higher education to medical school and nursing school systems, as well as continuing education for medical professionals, is still absent.
Education and Training is key for hospice palliative care provision and adoption.
We promote knowledge sharing to support higher education institutes to include palliative care into curriculum.
We review and advocate for a comprehensive range of education and training courses for professionals working in hospice and palliative care.
We support institutes that can develop certificate programs to train a workforce in palliative and hospice care field.
We aim to ensure the workforce is fully equipped with skills they need to provide the best possible care and leadership.
3. Quality Measurement and Enforcement
We advocate for existing Standard Operating Procedures , established guidelines and quality framework, quality metrics to ensure quality care is provisioned.
We offer support programs to help palliative care programs and hospice care service providers to adopt the established quality framework and quality metrics to achieve and maintain high standard in services they deliver
4. Fund Raising
We raise funds to support our operation and activities in advocating and promoting hospice palliative care in education, training, and service programs.